Catching Up…

Well, I appear to be back. Which is an interesting place to be.  Let's review where I went:

In December I'd already been cycling to and from work, and in January had started sessions with an exercise trainer who'd done lots of reading up on HMS/ EDS (and seemed to know more than me) and was feeling quite chipper about my physical health.  My lungs had started to "open up" again, and I was feeling a lot of the benefits of being more physically active.

Then in mid-late-February I injured my neck badly. (Please don't ask how: from experience, we'll both regret it.) Now, I'm used to injuring my neck - it's a bit par for the course with the way my hypermobility works. So I left it alone, doing all the usual right things (reduce burden, immobilise, sleep a certain way) that usually sorts it out within 48 hours.

Then I got back on the bike.  And it became clear really quickly that this wasn't going away, even though it waxed and waned, and I'd have to stop doing an exercise that relied on me being able to look over my shoulder as I no longer could.  I went to my usual physio, who assessed me (yes, I was right: I'd injured something in a different part of my neck from usual, and it was a generally unusual place to boot), gave me some exercises, and asked me to come back.  In the meantime, I was back in taxis and buses, spending a bunch of money on that and physio.  Which, it turned out, didn't work - my neck was busted badly.  She suggested I get X-rayed, and a desperately frustrating cycle of annoyance and admin kicked off.

Short version:

5 second X-ray from one angle - nothing to see, reported by SMS. Wow.
10 minute examination by rheumatoid specialist - you don't have EDS. Er, okay, but why...? Go to a physio. Yeah, er, thanks...
30 minute back-and-neck massage from 19-year-old at a spa in Cardiff - regained at least 50% range of mobility. WOW! {tears of joy}

By this point, it was mid-May. Once the range was back enough for me to at least vaguely look over my right shoulder, I got back on the bike, and back into the mat exercises.

One small problem - a persistent cough that started with a bad cold on 1st May. This is buggering my sleep, which means that I spent a while sleeping on the sofa to avoid disturbing everyone in the house, which means the kind of discomfort you'd imagine. Also: a ridiculous amount of nosebleeds. Joyous.

This, however, has not noticeably stopped me from becoming more active again.  For a start, it's not in my lungs, as far as I can tell, so my breathing itself is okay. And once I get past a certain point in any exercise event, all the nice neurochemicals kick in and open up my respiratory tract, reducing inflammation and phlegm, and I have this wonderful phase for a brief period afterwards where I just don't cough. :)

The next post will deal with what I've been doing, exercise-wise. :)