Showing posts with label hypermobility. Show all posts
Showing posts with label hypermobility. Show all posts

Sunday, 3 September 2017

Back in the saddle

TL;DR - New regime seems interesting; cycling longer distances is a bugger against the wind, but my app has great safety features for cycling/ running alone in isolated places; those of us at the whim of menstrual cycles have some interesting things to learn about what progesterone seems to (spoiler: metabolic and heart rate changes)…

So I’m back in the exercise mindset and have started using the Fitstar by Fitbit app. So far I’m impressed - the first session in the “Get Strong” program I’ve selected (muscle-building and cardio - exactly what I’m after) was 20 minutes long, with three short breaks programmed in, and it didn’t seem ridiculously taxing and yet I am exactly the right amount of sore today. I need some new stretches for calf muscles - anyone got any good ones that won’t fry a bendy?

I’d already committed to either going dancing last night or, if no-one was going to come with me, a longish bike ride today. Bike ride it was, despite having woken up with fun menstrual cramps. I dithered a little, but eventually set off wearing too many layers and with a brisk tailwind. Obviously that was less fun on the way back (although I’d stripped down one layer, which helped), but, oddly, having given myself permission to stop whenever I needed to, I persisted all the way back.

I also tried out the “Beacon” element of the Strava app, and sent the associated link to a couple of people who were able to watch the little dot of me trail out then home, even being told how much battery life my phone still had! Someone’s put a lot of thought into that…

Way out
Way back

Back home, I showed one of the beacon-watchers (a similarly nerdy scientist) graphs of my heart-rate on the way out and back (distinctly different!), and discovered a weird pattern in my resting heart rate (RHR) courtesy of the Fitbit I wear. Turns out my RHR shifts across the weeks in a distinctive pattern. I did some Googling and found out that heart-rate and baseline body temperature shift across the menstrual cycle, peaking briefly at ovulation, then climbing again through the luteal phase. This could explain why a lot of us are different amounts of hungry and for different types of food across the cycle - our metabolism is shifting in response to these hormonal changes.

I don’t know about you, but this is going to make a difference to how I train across the cycle. I need to put some thought into exactly how - does this mean more strength-building challenges in the first part of the cycle (taking advantage of lower joint laxness and lower injury risk) and more cardio in the second part (taking advantage of running hotter) or the opposite way around (i.e. more cardio when my system’s slower)?

I’d be interested in hearing what anyone has to say about this. (Also whether anyone’s started a pool for when I next injure myself and put myself out of the running for all this… running around.)

_________________________

Some links on RHR/ menstrual cycle research, if you’re interested:

Twelve month study by Clue with largeish subject pool

Personal study by one Redditter

Another study from 2000

Wednesday, 17 May 2017

BEEFCAKE!

So, as I mentioned in my previous post, I’m back on the getting-strong trail. Finally. This mostly involves just doing lots of stuff and being active, but also some focused exercises.

For the explicitly (mostly upper-body) strength-building stuff (what I tend to call the “hench mat exercises"), I do press-ups (normal and wide-arm), planks, leg-lifts, and - when I get to that stage - chin-ups.

Once all these are relatively easy, then it’s onto more exciting gym machines, which actually means entering a gym - all these other things I currently do at home.

In the meantime, I also want to get back into free weights but without, you know, injuring myself again in the manner of a muppet. And I’d also like to ensure that I’m making the most of recovery time between exercises by eating the right foods.

So this is also an advice-asking post:

  1. What/ where are good resources for finding out about free weight exercises (and advice about actual weights to use) for people who injure themselves easily yet build muscle quickly (or even just the former)?

  2. What/ where are good resources for finding out about good foods to eat and drinks to drink for recovery after exercise and maximising efficiency of building muscle from exercise? So far my best bet appears to be chicken (high protein but not too heavy on my poor stomach).

    (I used to eat protein bars, because they’re convenient and portable and last for ages, but they’ve changed the recipe for the ones I liked (read: the only ones I found that weren’t disgusting/ allergenic) and so I’m kind of scuppered again. I’d be particularly interested in finding some new, non-allergenic (milk: fine; ton of sweetners, nuts, eggs, or chocolate: not fine) protein bars...)
I’ve been doing the Hench Mat Exercises again for a few weeks now. I’ve managed to push through the “But I don’t like it!” stage into “Oh, does today have to be a rest day?!” remarkably quickly, which is something to be happy about. The same thing happened with the bike, which was also gratifying. My main worry now is the perennial “Fay gets cocky and overdoes the exercises so that she injures herself... Again” problem.

Remarkably, I’ve only just thought about recording progress on a spreadsheet, so I can’t tell objectively if I’ve got any more adept, though it feels like I have. I know explicitly that I’m holding my planks for longer (at first I was pleased with 47 seconds (which would sink ignominiously to a bare, shaking 30 towards the end of a session), but now 01:05 is the baseline (can be as much as 01:20 to start, which then sinks to 47 seconds towards the end of a session... or rather: the middle, weirdly, then back up to 01:02). As for number (and quality) of press-ups, etc., I don’t have the data for that, so we’ll have to see...

This rambling post was brought to you by, among other things, a new medication that the specialist is trying me on, which word-suppressing funtimes side-effect is making everything more of a chore when it comes to communication.

Yay.

Monday, 8 May 2017

Back in the Saddle

Blimey. It’s been over a year since I last updated this. So what’s happened in the World of Fay Health & Fitness since then?

  1. Injured myself at home on the actual day of that event. Foolishly. Luckily, it’s a neck injury I’d had before, so this time I didn’t piss around, got hold of a physiotherapist (my old one having semi-retired), and got into a bunch of new, neck-related exercises.
     
  2. After recovering from foolishness, continued to do lots of cycling, but just back on a daily, get-everywhere-I-don’t-need-to-transport-gig-gear/people kind of way.
     
  3. Got back into mat exercises - press-ups, crunches, planks - plus the fun addition of chin-ups, courtesy of a bar you can slot above the doorframe (and a stack of books to stand on, because I’m not that tall (despite being tall for a poet), and our house is old, so the ceilings - and therefore doorframes - are high).
     
  4. Went to the Edinburgh Fringe in August to take part in the usual shenanigans, which, from a health perspective, involved:

    Positives: a bunch of weight-lifting (hauling my crap up six flights of stairs virtually single-handedly as my flatmate had a hernia); walking 2-3 miles/ day up and down a very steep hill (luckily, I lived at the bottom of the hill), sometimes more if I had to go home and change between shows; continuing with the daily physio exercises and the twice-a-week, more hench mat exercises.

    Negatives: bad/ little sleep; the usual dehydration and when-the-fuck-do-I-eat issues leading to a little weight loss; abundant and often unnecessary stress (necessary stress I can deal with).
     
  5. On the final couple of days had a troubling cough and sore throat, which I powered through on sheer adrenalin and stubbornness, which transmuted into a cold as soon as I started the long drive home through the night.
     
  6. Cold turned into a chest infection and laryngitis, and then… and then I couldn’t speak, sing, or anything vocal, couldn’t bend over to pick things up, couldn’t lie down flat, couldn’t eat much, was constantly coughing and had chest pains and stomach pains, and then the bit where my throat kept closing off, stopping my breathing, all of which made sleep difficult.
     
  7. I lost a LOT of weight. And no-one seemed to know what was wrong. Everything hurt, everything made me cough, and the only thing I’d ever relied on my whole life - my voice - was gone. And no-one seemed to know beyond a shrug whether it would ever come back.

    I pushed on through work, though had a lot of sickness leave, including after a trip to A&E (waking up in the middle of the night entirely unable to breathe and retching mucus) when I was signed off for a couple more weeks after I’d only just got back to work.

    As you can imagine, my mental health took a steep and long fucking dive. And even the physio exercises were out for a long time because of the aforementioned not being able to lie down flat, so my joints started to suffer in a major way. I slept (hell: I lived) on the sofa for about three months for fear of waking everyone constantly with the coughing and the terrifying choking noise that happened every time I dropped into proper sleep, even when propped up perpendicularly. It was bad enough that I wasn’t sleeping…

    It was horrible. And then there was the (thankfully apparently a clerical error?!) cancer scare.
     
  8. Slowly my voice returned to something that was at least audible (though it’s currently fucked again - yay) as I learned what I can eat and not eat (I’m even more limited now than I was before), and which drugs and supplements help and which are, at best, useless.
     
  9. They still don’t know what’s wrong, but the latest notion is to put me on a very low dose of something that, at much higher doses (like: fifteen times higher), is used as an anti-depressant.
     
  10. I’ve recently got back on the bike. I am still horribly unfit. But I was haemorrhaging money trying to get around town and this is worth it long-term.
     
  11. I’m even more recently back on the mat exercises, after I managed to injure myself doing ill-advised free weight-lifting (yes, again) a couple of months ago, and put a crimp in the cycling and some of the physio for a while.
     
  12. I’m not living my best life right now, and I think the definition of that is going to have to change, but hey - who needed creative career plans anyway…?
     
I thought I’d go back to the blog because I actually wanted to ask some dietary advice, but I’ll leave that until the next entry, because it’s a bit much to cram into a catch-up post as well…

Thanks for reading (and, to some of you, waiting so patiently).

Tuesday, 15 March 2016

On Attitudes and “Progress”

I had a conversation with someone very recently that made me see them - and myself* - in a whole new light.

First, some background (skip if you like).
Strava, the app/ site I use to log my rides and measure my progress, has a couple of things that I really like in terms of motivation:

1. Social aspect - people can give you "Kudos" (basically a thumbs-up) for a ride/ run (I don't do running) and can leave comments. It's a whole thing. I like both giving and receiving kudos, and sometimes I comment on "I ran really badly"-labelled activities with "Maybe, but you did run."

2. Comparison on "segments" - people can set up either public or private segments so you can check to see how you do on certain sections of a road/ track/ whatever against the average person/ your gender/ your age group (well, those in that demographic who use Strava, anyway).  More importantly - to me - you can compare how you do against yourself, and each time you do a segment faster than before, you get a new personal record (PR), complete with tiny, virtual gold medal.

You can set up the app so that, while it's recording your current progress live, it will read out to you which segment you're on and - if you've done it before - what your current PR is for that segment.  It'll also tell you how you're doing when you're halfway.  (If you've never done it before, it'll tell you the overall best from other people - I generally ignore this.) I, personally, especially for commuter runs, would prefer it to announce what my average time is, so that I can tell how I'm doing for getting to work. But hey - if I tell them, maybe they'll make that available as a option.

Background done.

So yesterday, on the way to work, I had some tailwind.  The prevalent wind in (my part of) Cambridge is generally in the opposite direction, so it's nice not to be fighting my way into work. (On the other hand - more of a slog getting home; oh well.)  The Strava Lady announced that I was starting the 0.2 mile "Milton Road Buslane start to Milton Arms sprint" (I didn't name this) segment.  I was whizzing along by this point - good tailwind, no randoms crossing in front of me and slowing me up; it was all good; maybe today was the day...  I got to halfway, and she said "halfway: ahead by 7 seconds." Ooh! I'd somewhat resigned myself to not beating my 1:06 PR for at least the next few months, and I thought: it's today! Come on! And behold - I beat my previous PR by 8 seconds.  That's a 12% decrease, right? Considering the all-time recorded time on Strava for this segment is 31 seconds, I doubt the leaderboard are crapping themselves, but it means there's room for improvement (if I ever get a tailwind again/ do continue to get stronger and faster through the training).

So far so nice start to the day.

So then I get talking to a non-cyclist. I tell them the "it told me I was 7 seconds ahead so I pummelled it and beat my personal best! Yay!" story and... they didn't share my jubilation.

Their opinion was that I'd done it wrong: "So, instead of coasting for 7 seconds, you pummelled it? That was a mistake - you'll never beat that."

At the time, I just felt puzzled (and, okay, mildly deflated).

This morning, with a milder tailwind, and tired from a dodgy night's sleep, I heard the announcement of the start of the sprint on my earphones, and gave it a medium amount of welly, wondering how close I'd get to the previous day's PR, but not too bothered either way.  And I got to thinking about that conversation. It occurred to me that it spoke a lot about both my general attitudes to life (when the wind's behind you, really go for it!) and theirs (you don't want to push harder when things are going well...).  I've not entirely finished thinking about this (hence post), but it seems to me that this is something about ambition, goal-setting, and where effort is best placed.

I consider myself still "in development" - I likely will until I'm in my 90s, at least.  There's lots of things I don't know and can't do yet, but I've not given up on all of them (okay, still working my way up to swimming - shush). Generally, nowadays, while cycling, I push to at least 80% maximum effort - whether or not I'm  running on time/ late for/ early for my next appointment/ there is no appointment. I've not only changed my body, but I've changed my mind about how long it takes me to get from one place to another, and how long a distance I can actually do.

So I think that "let's just fucking do this, and do it hard" is a great way to get further faster. To progress. But that's only important if what you want to do is progress - which, to my mind, means: do it faster, better, stronger - and if you don't, if you want to maintain your current position, that's a different approach, and a different set of priorities.

At the moment, I'm not strong enough to overcome the underlying bullshit that is HMS/ EDS. So I need to progress on that front. And my (artistic) career isn't where I want it to be, so progress needs to be made. Maybe my friend is in exactly the place they want to be.  Or maybe something's scaring them about the notion of moving on, and I think - if that's the case - it's more likely to be fear of success than fear of failure. And I think I could learn a lot from my simple attitude to fitness, and apply this to other parts of my life. There's places I want to be, and I need to be taller to get there...





*Yes, that's a correct** use of the reflexive.

**one of the few

Tuesday, 13 October 2015

Steps Forward and Back

So, I'm back on the bike again. What do you mean, you didn't know I was off it...?!

{Checks back catalogue; curses}

Okay, so, it looks like a) I've been somewhat quiet on this front, and b) history repeated itself a bit.  Here's what happened over the intervening months since my last post:

1. Cycling every day (pretty much; certainly work days when I didn't have gig gear to carry, and Wednesdays when I had real life people meetings in places).

2. Physio every day (EVERY day; like a BOSS).

3. Mat exercises twice a week (come on!).

4. Eating a balanced diet.

And then August happened.  And August has Edinburgh Fringe in it. So no cycling from 19th August onwards, but lots of walking, and a handy new wearable gadget that maps how much and where I walked (because my passive movement tracking app stopped working).

So I scaled Arthur's Seat (yay!) and even coached someone else up it (come on!). Didn't even injure myself, unless you count sunburn.  I even kept up my physio and the strength-building mat exercises (despite some logistical difficulties - you try doing crunches on a mat on a polished wooden floor... without sliding across it and into a table).

And then I fell over on my face on a simple walk back down an urban hill, a couple of days later, and lots of health things cascaded, including my one filling jarring free and me getting a lot of pain and then a rubbish temporary filling which didn't let me chew so my nutrition was difficult to maintain and yeah - living off liquid food makes you lose more weight than you're comfortable with, if you're me.

Arse.

And then the trip back from Edinburgh with Too Much Luggage and bad lifting form and behold - buggered wrist.

So I was sensible - cycling hurt my wrist, so I paused on cycling and did some stretching and strengthening exercises for the wrist, and stayed off the press-ups, etc.  Then I got back on the bike. Yay! Then I got back into the mat exercises. Now, bear in mind that I hadn't done any since August, because I didn't - I just charged on ahead regardless like someone who was intent on injuring myself. Which I did.

This was 30th September. 1st October I got on the bike, unaware of how much I'd buggered myself. By the time I was heading home, it was clear that what I needed to do was immobilise that joint as much as possible.

It's nice to find that I've learned something.  I didn't prevent the injury this time, but I prevented it getting worse.  I immobilised as much as possible, asking for help, reducing movement, adjusting everything I could to ensure that as little strain was put upon the joint as possible. (Except on Thursday 8th when I joined in a yoga conversation in work and decided to demonstrate that I shouldn't do a certain move by doing it. 24 hours of migraine-like pain later and I'd learned another lesson about hypermobile injuries.)

So apart from yoga foolishness, I am pretty much recovered (read: it still hurts a bit but I can use it and I was more stressed by not being active) and back on the bike,  I cycled to Milton Country Park on Sunday with a friend to do some walking and wittering, then to and from work yesterday and today.

It was somewhat sobering to look back at the previous two blog entries and think: oh, so exactly like 3-4 months ago, huh? I left behind some good advice for myself, though, so that's a blessing.

In preparation for 20th March - Sport Relief again, baby - I'm going to be setting up a plan for increasing activity, strength, endurance, and general fitness. I'll keep you all posted as to what's next...

So, what's the current state of play (physical health-wise), all told? I am still a little hurty in the shoulder-neck joint and in my right wrist, and I'm finding it hard to put the weight back on. (And yes, I've tried eating all the biscuits - all that happened was I felt like crap. Presumably I need to eat a bunch of steaks and cheese.  Who knows?  All I know is that there are very, very few people out there who want to talk about the problems of losing too much weight and discussing how to put it back on.) So there it is.

Monday, 22 June 2015

Changing Relationships

So, I’ve blogged before about pain. About what “stop comes before ow” really means and how you can be guided by, but also ignore pain if needs be.

As I get more into the old exercise regime, the more pain I’m experiencing.  Some of it is “good” pain - e.g. the stiffening and burning of artfully-shredded muscle fibres that are on their first steps to growing back thicker.  Some of it is “bad” pain - e.g. the twanging of a shoulder joint that’s experienced injury due to superfluous effort in a less-advisable position.

Now, I’m prone - like probably every enthusiastic bendy - to overdoing things, breaking myself, and having to take a break from exercise as a result.  This has been well-documented in me, even as recently as last year’s big fitness push, and I find myself there again, having gone too hard on the old press-ups last week and now having unilateral neck pain, and pins-and-needles in my left arm due to a twanged shoulder. (Yes, it’s The Particularly Borked Shoulder.)

But something occurred to me last week, as I was going up the stairs and thinking: “yep, this is an injury, not just a post-exercise burn” - it’s not a disaster.

Let’s say that again: It’s Not A Disaster.

In the past, the pattern has been: start exercise regime, forget sensible approach after a couple of goes (at most) and overdo things so that an established weak point is compromised, curse a lot, rest for ages, start again only after I’m really fed-up of being unfit.

And I’ve managed to manage that somewhat - I’ve been building more slowly (last week notwithstanding), being more alert to potential injury, stopping sooner, and giving myself space to recover before getting back into things without leaving it so long that I’m actually more prone to injury if I try coming back in at the same level.

But in the past it’s been all: oh! ow! and then beating myself up for a muppet. Catastrophising the pain and popping myself in the victim box all over again. The pain is punishment! The pain is validation! The pain is a full-stop!

Waaaiit... rewind - the pain is validation?  Hmm, sounds like some kind of brain weasel talk to me. And it’s a problem that, the more I think about it, the further it goes back for me.

There’s an awkward balance to be struck when your body is limited in a particular way.  You have to own it in order to manage it.  But sometimes that very self-definition can take you deeper into NOT managing it.  Speaking for my own situation, it’s useful for me to say: “Because of underlying weakness and historical issues, I stand a much greater chance of injury if I lift things above shoulder height, so I’ll avoid doing that.” It’s less useful to say:I’m limited, so I can’t lift things, so I won’t.”  It’s useful to acknowledge where pain stops being a good guide and is just distressing/ distracting/ a sleep-killer.  It’s less useful to shy away from all pain and hold myself in a kind of twitching huddle in a corner, hemmed in by painkillers and fear, outraged because I’m not pain-free.

Because I’m never going to be pain-free.  I don’t know about anyone else, but I know I’m always experiencing pain somewhere at any given time. There are some Usual Suspects, but sometimes they all kick off, and sometimes it’s a new place, and  most times it’s only one or two of them.

But if I define myself purely by my pain, and use that as an excuse not to do things: I Am A Limited Person, Here Is My Badge Of Pain, that’s, well, frankly a bit rubbish.  Pain as validation as a lesser being is a weird circular argument that does no-one any good. I wouldn’t expect anyone else to be able to get away with that, so why me?

And pain is clearly not a full-stop. That was the conclusion on the stairs - if I see the muscle burn of good exercise as a landmark on the way to becoming more awesome, I need to start treating the Usual Suspect Injury Pains as landmarks as well, somehow. Whether as a learning point of how far not to push things, or some kind of psychological step on the route to better self-acceptance, or better ability to ignore unfixable pain, there must be some use in it, and seeing it as a full-stop disaster where I swoon in a bower and wait for some bugger to come rescue me is helping no-one.

Not entirely sure where I’m going with this yet, but this feels like a positive realisation, and a potentially very useful mental tool.

Monday, 1 June 2015

Grindstone, meet Shoulder

So, as I’ve just posted, it looks rather like I’m back in the old exercise saddle.

I have bust through the notorious two week point (don’t know about anyone else, but if I can make it through two weeks of good exercise habit, the pattern is generally set until injury) and so far appear to be injury-free (you know, above my usual baseline of "various bits of me are a bit wrong").

So, what have I been up to?

1. Cycling
2. Large Muscle Physio Exercises
3. Small Muscle Physio Exercises
4. Butch Core Mat Exercises
5. Dancing
1. Cycling
I’ve been doing my best to cycle everywhere I can.  This is by no means every day (sometimes I’ve got massive stuff to carry; sometimes I’m not even leaving the house; today I couldn’t find my cycling helmet until after I’d given up and ordered a taxi), but most days, and I’m generally clocking (when the app bloody works) between 3-7 miles every day that I do cycle.

Advantages include cheapness and smugness alongside muscle strength; non-weight-bearing cardiovascular challenge; and the sensation of my lungs "opening up" again; forces me not to carry too much stuff with me.

Disadvantages include smelling bad (or feeling like I smell bad); dangerously ignorant cars; annoying cyclists; headwind; forces me not to carry too much stuff with me ({pout}).

Improvements to be made include being more systematic about where I put my gear, and getting better into a regime for the mornings in order to get to work more on time.

2. Large Muscle Physio Exercises
I’ve only missed one morning physio session in about 8 months, and that was when I was too ill from The Cough to go into work, so I sat on my arse and watched Netflix.  Other than that, I’ve been doing my usual:

leg-lifts (supine, sideways, on my belly)
crunches (normal, side, and slightly twisted)
kicks and crosses

All of these from the floor, and apparently - according to various friends - quite similar to a lot of Pilates moves. Most of them are designed for either 20/ 10 reps. As advised by physio.

Advantages include simplicity; portability; being part of a good morning habit; excellent for core strength; great for a range of leg muscle strength and stability; really good, demonstrably effective way of ameliorating and preventing pain, damage, injury etc. from long-term standing.

Disadvantages include finding enough room to lay flat, arms and legs full stretch in all directions, on a surface that won’t hurt to exercise on; needing to do it before breakfast otherwise indigestion; them doing pretty much nothing for upper body strength/ stability, which I badly need, considering the frequency with which my shoulders/ neck get injured/ go out of alignment/ both; they’re really only any good for maintenance rather than development.

Improvements to be made include getting them done earlier in the morning; finding something maintenancey to add to them for arms, shoulders, etc.

3. Small Muscle Physio Exercises
Instead of waving whole limbs around, these focus on tiny, tight-to-the-bone muscle groups, ostensibly to improve stability. Instead of lifting against gravity, you’re squeezing or pulling against yourself - these are for arms (and therefore shoulders and wrists), and can be done either sitting down or standing up:

pushing palms/ fists against each other
hooking fingers and pulling hands/ arms against each other
palm-against-back, one hand pushes towards the body, the other pushes away (then swap)

All of these forms are done in front of the torso, above the head, and behind the torso, holding the push/ pull for at least ten seconds before moving onto the next form. As advised by physio.

Advantages include them being for shoulder stability, which I badly need; massively portable (I can - and usually do - do them at my desk at work); hard to see how you can injure yourself only pushing against your own strength.

Disadvantages include that they’re super-boring, so it’s difficult to remember to do them unless I’m already injured and thinking about that kind of thing; it’s difficult to discern any difference even after doing them for a while.

Improvements to be made include setting up a thrice-daily reminder to do them, like I have the once-daily to do physio, twice daily for nasty medication, etc.; do some research into how they function and how to spot the difference between doing and not doing them; add more neck ones (which I’m currently not doing because they’re more fiddly and look "weirder" than the arm ones in work!).

4. Butch Core Mat Exercises
A long time ago I went out with someone who was a Navy officer and who taught me how to do a press-up. In fact, taught me that I could do press-ups. He taught me a routine of three types of press-up ("normal", wide-arm, and wacky ones with hands close together to challenge the triceps), and three types of sit-up ("normal", twisted, and crunch). I vaguely remember that I was supposed to switch up between these and do lunges or squats or some other damned thing that I can’t do these days because knees. He also showed me free weights.

A more recent partner taught me about planks and tricep dips, rest days, and doing crazy things like press-ups or planks with your feet elevated (I don’t think I’ve yet done these). Another showed me Russian twists, deadlifts, and how to improve my full-leg-lifts (i.e. both at the same time) in order to make them more challenging. The internet (and Wii-fit) showed me flying press-ups and some crazy versions of crunches.

This, I suspect, is why I used to have a six-pack - I used to do a bunch of this EVERY DAMNED DAY, along with punchball exercises and free weights every other time.

Instead of doing the usual thing that I do which is flail wildly into DOING ALL THE EXERCISES ’TIL I BREAK then advanced pouting for six weeks, I’m moving slowly back into Butch Exercises by doing increased reps and increased sets of only four forms to start off with, including lying the hell down between sets:

a) "Normal" press-ups. Generally up to 20-25, except for at the end of the event, when the sets are more like 10.

b) Planks. I’m now up to minimum 1 minute, even at the end of the event (although a lot of swearing is currently involved when I come out of the form on the fourth go-round), and up to 1:40 max. I know this isn’t much, considering that the world record is in hours, but it’s my best, dagnabbit...

c) Double leg-lifts. I’ve injured myself with being over-enthusiastic with these, so - even if I’m feeling full of vim and strength, I tend to only go to 16 max, even at the beginning of the event.

d) Wide-arm press-ups. Only for the latter half of the event once I’ve warmed up, and - again because of former injury - I keep the set reps to ≤ 10

Advantages include fast speed of discernible differences; really feeling core tightening; butch satisfaction of "proper" aches the following day; done right the press-ups lead to good shoulder strength and - I think - stability; measurable progress (more reps before exhaustion, longer holds on planks); some cardiovascular challenge; have to do them from the feet.

Disadvantages include how easy it is to get carried away and bugger my shoulders, especially the Especially Borked One (left), leading to aforementioned six week pouting; not entirely convinced I’m doing the forms properly (could I be preventing injury with better form?); if I forget to stretch properly afterwards, I’m screwed; not very aerobic; have to do them from the feet.

Improvements to be made include setting limits on sets/ reps and - instead - adding new forms at lower reps; getting some advice about forms.

5. Dancing
Only just got back into this on Saturday just gone. I have no discipline beyond the beat, and making sure I wear vaguely suitable shoes (canvas trainers with ankle support) rather than The Boots. I stamp, pogo, flail, mosh, gurn, wiggle, grin, pirouette, and do fancy-ish footwork with lots of crossing-over of feet, kicking, and double-kicking.

I’m a bloody maniac.

Advantages include the weird fact that I can keep up sustained fast movement to music far longer (HOURS) than, e.g. running on a treadmill, which makes me want to die in a tiny ball of fail; excellent aerobic and cardiovascular exercise; needs no special equipment (except aforementioned change of footwear); by far the most social of my exercise activities; cheap (for me - I go to an indie club 3 miles from my house that costs £4 to get in, with free parking, and £1/ bottle of water); the way I dance means that it’s a full-body workout (sustained rhythmical flailing is surprisingly hard on the arms).

Disadvantages include the fact that the clubbing-dancing I’m doing leads to very-late-to-bed, and further sleep disturbance; not very portable (needs friends, and I’ve only found one club in Cambridge so far that plays my kind of music); it’s all too easy to forget to stretch out afterwards and e.g. have very tight calves hobbled by All The Pogoing (rather like I’m feeling today...); all the attendant issues of clubbing in dodgy little places (unsprung floor which stands fair to bugger joints with impact; no mop-up for perilously-spilled drinks on the dancefloor) and any vaguely mainstream venue (no, mate - just coz I smiled at you while jumping up-and-down to Song Two does not mean I want special cuddles with you); moshing is seriously bad for your neck, dear heavens; badly-coordinated people with interpersonal space issues leading to bruising, and/ or, in this instance, a blistered toe from a poorly-managed stiletto.

Improvements to be made include getting a regular night to go out on, co-ordinating friends; some research into other clubs that might play my kind of dancing music (indie, indie-rock, trance, techno (or whatever the youth call it these days), almost anything from 90s except hard or cock-rock); look at finding ceilidhs/ folk-dancing groups locally, because nothing gets you properly out of breath like a good twmpath.


And that’s your lot for the moment. :D I plan to be updating on the progress on these (including any injuries - my left shoulder’s been feeling a wee bit gimpy as I’ve been typing this...) over the next few weeks/ months

Catching Up…

Well, I appear to be back. Which is an interesting place to be.  Let's review where I went:

In December I'd already been cycling to and from work, and in January had started sessions with an exercise trainer who'd done lots of reading up on HMS/ EDS (and seemed to know more than me) and was feeling quite chipper about my physical health.  My lungs had started to "open up" again, and I was feeling a lot of the benefits of being more physically active.

Then in mid-late-February I injured my neck badly. (Please don't ask how: from experience, we'll both regret it.) Now, I'm used to injuring my neck - it's a bit par for the course with the way my hypermobility works. So I left it alone, doing all the usual right things (reduce burden, immobilise, sleep a certain way) that usually sorts it out within 48 hours.

Then I got back on the bike.  And it became clear really quickly that this wasn't going away, even though it waxed and waned, and I'd have to stop doing an exercise that relied on me being able to look over my shoulder as I no longer could.  I went to my usual physio, who assessed me (yes, I was right: I'd injured something in a different part of my neck from usual, and it was a generally unusual place to boot), gave me some exercises, and asked me to come back.  In the meantime, I was back in taxis and buses, spending a bunch of money on that and physio.  Which, it turned out, didn't work - my neck was busted badly.  She suggested I get X-rayed, and a desperately frustrating cycle of annoyance and admin kicked off.

Short version:

5 second X-ray from one angle - nothing to see, reported by SMS. Wow.
10 minute examination by rheumatoid specialist - you don't have EDS. Er, okay, but why...? Go to a physio. Yeah, er, thanks...
30 minute back-and-neck massage from 19-year-old at a spa in Cardiff - regained at least 50% range of mobility. WOW! {tears of joy}

By this point, it was mid-May. Once the range was back enough for me to at least vaguely look over my right shoulder, I got back on the bike, and back into the mat exercises.

One small problem - a persistent cough that started with a bad cold on 1st May. This is buggering my sleep, which means that I spent a while sleeping on the sofa to avoid disturbing everyone in the house, which means the kind of discomfort you'd imagine. Also: a ridiculous amount of nosebleeds. Joyous.

This, however, has not noticeably stopped me from becoming more active again.  For a start, it's not in my lungs, as far as I can tell, so my breathing itself is okay. And once I get past a certain point in any exercise event, all the nice neurochemicals kick in and open up my respiratory tract, reducing inflammation and phlegm, and I have this wonderful phase for a brief period afterwards where I just don't cough. :)

The next post will deal with what I've been doing, exercise-wise. :)

Wednesday, 16 July 2014

Unwelcome Guests (in the body)

This has not been a great week, physical (and therefore mental) health-wise.

Basically, despite being Little Miss Healthy, my joints decided that the thing they really, really wanted to do was suddenly stiffen and hurt. All of them. A lot.

Now, sometimes this happens, e.g. hurting like the Devil after dancing for the first time in years, and more often than not I can point at a cause and work away from/ ignore it accordingly:

  1. Dancing like a maniac/ standing for ages - the concomitant muscles/ joints hurt as you'd expect.

    Solution: Rest, plenty of water, stretching beforehand, bracing properly throughout standing period to prevent if possible.


  2. A long period without daily physio exercises - knees in particular suffer from this one

    Solution: Ease back into physio (i.e. lower reps until muscles restabilised).


  3. Being dehydrated - general achiness (apparently, according to my browser's spellcheck, this isn't a real word - tough) and "tiredness" of joints.

    Solution: The Universal one. Sorry. Well, obviously, I drink more water, and wait for recovery (a day or two).


  4. Eating too much sugar - as above dehydration.

    Solution: again, pretty obviously cutting the sugar down, working out why I'm eating badly (tired? bored? sad? leaving meals too late, so needing a quick fix, etc.?), drinking more water and eating more protein (don't ask me: it seems to work!)

Of course, sometimes I just get the 'flu or something, which again is known and can be accounted for.

Last Thursday I started hurting. And it didn't get better and in fact progressed. It was bits that normally don't hurt this extensively (wrist, knuckles, ankles, hips, jaw) as well as the usual suspects (neck/ shoulder, knees) and some old friends (lower back, upper back). And I've now been through a whole slew of emotions, including the classics of denial, anger, bargaining and depression (with a hearty dose of fear to boot), currently wobbling in and out of acceptance.

Wise people (with much worse versions of this condition than mine) have told me to not stress, and that it's just a flare-up, just a phase; I'll be back to normal in no time. I'm more optimistic in the mornings, when I'm reasonably mobile, but right now, with my hands seizing as I type, my optimism could do with some work.

Other people have told me I should eat this magic leaf, or cut out potatoes, peppers, and tomatoes. Others are counselling NSAIDs. I am honestly struggling to stay focused on anything other than putting one foot in front of the other, and I suspect that I am a massive grump monster in the evenings.

Being me is hard work right now, and with two weeks to go before I drive myself and a big pile of equipment to Edinburgh to start the gruelling marathon of the Fringe, I'm starting to get a little troubled...

Wednesday, 2 July 2014

Mens sana in corpore sano

(Whut? Latin - from a poem by Juvenal - means “healthy mind in a healthy body”...)

While I’ve been more than willing to subject you all (“all” is such a big word for an average of 35 readers per post, back in this blog’s heyday) to various intimate considerations of my physical health, and while the term comes up as a tag in eight posts (nine including this one), I’ve been more reticent about my mental health.

It seems that, in some ways, I’ve suffered in the past from a dichotomous position on mental health care, similar to my approach to dieting: i.e. it’s a great thing for other people to invest time and effort in, but a mark of shame (specifically: failure) in my own self. {sigh}

Exploring why this might be seems to take us perilously quickly into stereotypical realms of family history. So let’s not. Let’s move onto the position I find myself in now, where I’ve come to view psychotherapy as being pretty much identical to physiotherapy: part of you is misaligned in a way that makes you uncomfortable and takes up energy that you could be spending on much more productive activities; discussing things with an expert in the field and following some of their advice to realign things, trusting your own judgement as well as theirs, seems pretty sensible.

Just as with physiotherapy, finding a good psychotherapist whose approach suits you (and, maybe more specifically, has the ability to take the you that you are now and help you on the way to transforming to the you you want/ need to be) is pretty key. And finding ways to keep going with their advice and guidance between sessions will give you a lot more benefit (and save you a bunch more money) than putting all your dependence on them to “fix” you. Ideally, they will help you develop the tools you need to get to the place you want to be in.

We still, as a society, seem to have a prevalent view that physical and mental health are separate things (denoted by separate names!). I’m pretty sure that this is, long-term, an unhelpful notion. It would be great if we could get onto speaking in terms of “health” and leave it at that, moving onto the specifics (knee pain, asthma, eczema, depression, dissomnia, vertigo, migraine, agoraphobia, broken arm, etc.) if necessary.

The thing is, it’s all part of a system. Your mental health affects your physical health, and your physical health affects your mental health. Whether or not you subscribe to an idea of an incorporeal mind and a physical brain, the mind’s direction would still prompt the brain to make changes in the body based on electrical and chemical shifts. It’s an actual, physical thing that your mind does to your body. The same impulses that mean you can direct your hand to pick up a drink and tip, swallow, set down again, etc., can also make more insidious changes.

We still have Stone Age bodies connecting with rapidly-adapting brains, technology, environments, and social structures. The responses that were designed to get us out of life-threatening, physical danger quickly are being applied to much less urgent, but much longer-term stressors. Stress chemicals hang around in our bodies much longer than they were ever designed to do, to the detriment of our immune systems, hearts, lungs, blood pressure, digestion, adrenal glands, skin, hair, eyesight... pretty much you name it, actually...  In other words, our life-saving response to stress is now killing us (those of us who live in a mechanised society/ have non-physical jobs).

So it’s important to look after your mental health, because it’s you, isn’t it? And if you’re all over looking after your physical health, you need to be looking after your mental health, because it’s all the same thing. In order to get started on (and maintain!) a decent physical health regime, your motivation and discipline need to be right - and this includes not overdoing it and harming yourself with it too.

Look, I’m not one of those people who’s going to tell you that you can cure your own cancer by thinking right, and that colds are happening because you’re mentally lazy, but I am someone who’s read the research that indicates that recovery from any illness or injury is massively affected by mental attitude (for interest: you’re better off either being in strenuous denial or full-on determination to beat it than apathetic acceptance that there’s nothing you can do), and that, since cancer can be fought off by the immune system (we’re apparently all exposed to it multiple times during our lifetime - we only notice when we haven’t fought it off), and stress affects the immune system, good mental health can only help when it comes to preventing/ fighting off cancer.

And, let’s face it, your physical health affects your mental health - long-term pain is a git for wearing you down; illness makes you feel groggy and unlike your usual self; revelling in the fitness and strength of your body can help your sense of mental resilience, etc.

This is all a round-about way of saying that, for the last couple of months, I’ve been seeing a psychotherapist, and will continue to do so until I’m in a position where I feel like I’ve realigned what I’m capable of realigning for the moment. Unlike in previous goes over the years (the first one was great, but the second one was far too insecure, and the third one was an old-school Freudian overly-concerned about whether I was breastfed...), the current therapist appears to be a good fit for my world views, and visiting her appears to have given me the stable base from which I can ask difficult questions of myself in the meantime, and answer them too. There’s something curiously empowering about the thought that, as regularly/ frequently as I need it, there’s a safe space where I can go to express being as angry/ unhappy/ jubilant/ proud/ messed-up as I am without fearing social punishment, and from there move onto working out ways of realigning what’s causing me to be less than I could be, because misaligned stuff needs to be brought into the light before you can start tinkering with it.

Go metaphors.

See, this blog is about my quest to become closer to what I can be. (Remember Maslow and self-actualisation?) And that includes emotional and other mental function. I was born with certain physical issues that make fitness harder (hypermobility, asthma, etc.), and given others by the misguided actions of others (food allergies, generally crappy immune system), and wrought some of them myself (the gimpy RTA-shoulder, for example) and these are things that can be managed, overcome, worked around, etc., with some extra support and persistence, and with imagination and the right research and information. The same goes for my mental/ emotional issues - presumably some of it I was born with, some I achieved, and others I had thrust upon me. If they were different, or more profound, likely I’d need medication, like I do for other long-term conditions that no amount of exercise will change (asthma, for example), but that doesn’t seem to be the case.

My emotional resilience is already improved, and my assertiveness has increased. It’s like watching the way that persisting in physical exercise has seen my stamina, strength, and confidence improve, and for approximately the same reasons. Also in common: the mental/ emotional challenges outside of my comfort zone hurt like blazes the first time or two (see: dancing, cycling, weight machines), but that pain fades into strength if I keep going, especially if I give myself space either side of the early/ quantum-change challenges (and recognise which pain is useful and which potentially damaging... and then stop the latter).

This brand of psychotherapy isn’t forever, but it’s right for where I want to get to now, and that’s the best I can ask for! :) I'm going to continue to feel proud of the work I've done already, and the achievements yet to come - both physically and mentally.

Monday, 24 March 2014

The Aftermath

This needs to be made clear - I am very happy right now. Okay, it's my birthday and the sun has been shining its arse off in crisp, blowy weather - exactly how I like it. Okay, I now have an actual window seat in work that overlooks anything other than a grimy roof. Okay, I've helped Sport Relief to raise nearly £1000...

But I'm knackered, and constantly hungry - like persistently starving hungry today. And there is no musculoskeletal part of my lower body that does not ache, that doesn't stiffen into vicious immobility if I sit a bit wrong for longer than a few breaths.

And yet.

And yet I can't stop smiling. And yet I'm not being a total sap either - if people come to me with unnecessarily annoying bullshit, I politely, smilingly, do not take it. And yet everything feels like something either small, or fun, or a challenge I am looking forward to spanking. And, despite feeling pretty fuzzy in the head, at the same time it's like I'm seeing people very clearly.

If I stop, I'll fall over. I'm quite sure of that and am looking forward to it immensely. The six hours' sleep I had this morning were some of the best I've had in a long time.

How did I do? Well, I got all the way around (and around) Milton Country Park just fine, ta. The track turned out to be 1.45 miles long, which made calculating difficult. (It also adds a new perspective to the "struggled 1 mile two years ago" thing, now I come to think of it; it was nearly 50% longer!) I had some company along the way after all (possibly because I'd said before that I probably wouldn't), which was particularly heroic on their part as both of them had done the 5km swim the day before. Ellie ducked out after 3 goes round (fair enough with an undisclosed chipped ankle!) and Emma trudged on with me for another revolution, a swift sit-down, and a sneaky wriggle up the middle of the circuit, so that we ended up doing 6.25 miles (according to Google Tracks) in total. It took just under 2 hours, what with the pausing to take photos, the pausing to let actual runners past (and cheer them on), the toilet break, and the aforementioned swift sit-down (long enough to do me good, not long enough to get stuck).

(And then I had to drive home, via Emma's house, wrestle the car seats back up (buggering my neck/ shoulder again - a shame), tidy and clean the house, pack the car, drive to the venue, take part in a poetry workshop, watch other people insist on setting up the space (:D), run a show, pack up, take crew and features home, chat a lot of interesting stuff about poetry and accents and poets and language and training and poets and accents and women and poets and PhDs and poets and accents and dear God 1am, hi there...

Long day.)

How'm I doing physically? 

Well, my knees are surprisingly buoyant - certainly no worse than they've been in the past due to prolonged standing (which, if you remember, I did a fair amount of on Saturday), and do not appear to be swollen, which is nice. :)  Similarly, the soles of my feet are uncomplaining.  However, my ankles are surprisingly achey (this may well have been to do with the constantly-changing, bumpy, humpy, muddy, potholed terrain) and my lower back is disappointingly sore.  The most surprising set of aches is in my abdominal muscles - kind of interesting... And I want to eat everything. All of it.

What went well? 

The time spent on the walk was good - could have been shorter, but maybe it wouldn't have been if I'd pushed faster earlier...  I didn't start to feel the walk badly in my legs until about 4-5 miles in, and then pushed through the remaining distance. I did rest when I really, really needed to. I didn't run out of puff. The distraction of friends helped even more than I would have thought possible. I hydrated well (knowing that I would have somewhere to go if I'd hydrated too well!), and fuelled myself with morning porridge. I did my physio beforehand, but had rested generally, doing no weight-bearing exercise, the whole week before. And I was assertive about not standing throughout the concert the evening before, and tried my best to eat and drink well (lots of (particularly raw) vegetables, high fibre, as little refined sugar as possible, loads of water) during the week.

Oh, and I raised a bundle of cash. If you've not sponsored, you can do so at http://my.sportrelief.com/sponsor/fayroberts :)

What could have been better? 

Well, controversially, I think I could have done with some non-weight-bearing but vigorous exercise in the preceding week. If when I do this kind of thing again, I think I'll benefit from the rush of achievement of vigorous exercise in the run-up to something scary like this, as well as keeping up momentum on happy muscles and good bloodflow.  While I stood up less than I could have done the night before, I still did a lot of standing, and my sleep levels were rubbish that week (another case for more aerobic exercise?!). Also: while I rallied towards the end of the week, my diet wasn't exactly stellar during the preceding few days.

What next? Well, firstly I need to see how the recovery actually goes (update 25-Mar-14 - my knees are actually starting to hurt quite badly now; bugger), and I want to know more about this next-day euphoria and confidence. Have you run a (half-)marathon or 10k? Climbed a massive hill? Cycled to France or something? Is it like this? Or should I be looking at some other factors? Like the sleep deprivation, for example. Because yesterday was brilliant, and I feel like I could do with more of that, if my knees can survive it.  And I need another challenge - another milestone on this path of Being Fitter.  Any suggestions gratefully received, and I'm going to get some instruction from the gym in a few weeks' time, once I'm back in the mode, asking for some extra goals...

So thanks for the props, everyone, and yes: this blog will go on (though perhaps less frequently until I have a new Big Goal) as I continue to chart my relationship with my body, fitness, pain, and recovery...

Friday, 21 February 2014

The Shape of Desire

Part of yesterday's conversation with the physio was her questioning why I'm doing the (upper-body) exercises that I'm doing.  Why am I lifting weights, doing press-ups, etc.?

In particular, she was concerned that these exercises were a bit, well, male.  She covered, elucidating, saying there was nothing wrong with that per se, but that she was wondering: was I wanting to be a body-builder [cue hunched shoulders and loosely-raised fists]?

Well, there it is.  Why am I doing this?  Why am I pushing muscles in my upper body that were not designed by nature to be massive (due to HMS and, well, a lower testosterone level than the average bloke) to build?

Several answers, not all of which may be either wise, feasible, or even the whole story:

1. In October 2005 I had a six-pack and could lift sofas without much effort.  I also had the kind of lightly but defined muscular physique that made both women and men go "hmmm..." and "ooooh...!" with a little reaching-out gesture. (Yeah, baby...)

a) Being strong felt good physically - my wobbly joints were much more secure.

b) Being strong felt good mentally - being able to rely on myself and feel comfortable (even superior) in my body was rather nice.

c) My personal vanity is, perhaps, a little odd.  The resources needed to conform to many elements of acceptable Western femininity feel like way more trouble than they're worth, to me.  However, I revel in decking myself in a certain way as I move through the world.  I want people to see me, at a glance, as very much my own person, as attractive in an unconventional sense, and blending elements across genders.  I also like to look healthy.  So a little ripped (again)? Yes please! :)

(I felt right at home in Cambridge really quickly.  Wonder why...)


2. I gave up on that level and type of healthy after several things happened:

- motorbike (okay, fine: scooter) accident that made Borked Shoulder the way it is today (February 2006).

- massive (they took photos for a medical journal!) benign tumour;

- recovering from the surgery that removed it (vertical 5" abdominal incision - wasn't allowed to pick up anything heavier than 5kg for, well, a while - September 2007);

- the knee-based accident (and all the other, less easily pointed-at elements) that propelled me into the Year of The Stick (September 2011); and

- subsequent slow recovery from that.

I started feeling old.  I let myself become dispirited by the constant setbacks (I tried building in strength in 2006; scuppered myself lifting furniture; tried getting fit again 2010-11, not as hard as now, but cycling everywhere... then Stick Year... and then again in the summer of 2013...); I rationalised it as "I'm not meant to be fit", I think. And yet clearly this other model of me persisted underneath the whole time, because now I'm thinking: screw old, there are people who take up marathon running in their 70s.  I want to take this body as far as it can in terms of healthy, fit, and strong.


3. I don't want a male physique, I want a strong female physique, and I don't think I'll get that purely from physio exercises - I'll need to challenge myself, not just maintain myself.  I'm also pretty sure it would take more effort, time, and calories than I would consider worth spending getting perturbingly "bulky".


4. Up until now, not one single person (male or female) has told me that I shouldn't do press-ups, etc.

My dad (the very one who's struggled with my gender queerity in recent years) showed me how to do them; and a recent boyfriend showed me the variations on the theme.  We did them in school, and we were expected to do them in the few martial arts lessons I attended.  They're part of my model for "becoming fit and strong".


5. I enjoy doing weights, press-ups, planks, etc. Not only do I think they're fun (look, I'm a bit weird, just give up and go with this), but I enjoy being able to do them well (possibly in a tomboyish, showing-off-physically kind of way).


So here's the thing I'm going to try to find a way to say succinctly to the physio: this is the kind of body I want to aim for.  It's not unfeasible, and it's not toxic, so please help me get to a point where I can make that happen.  Ta!

So, unless anyone's got any better perspectives, that's The Plan.

Thursday, 20 February 2014

Body Blow

I walked out of the physio's this afternoon, clutching my hat against the wind and squinting against the sunlight, muttering certain anatomical terms.

The news had been mixed.

The good news first:

1. I'm doing a lot of things right.

2. The general prognosis isn't as bad as I'd assumed from what she said last week.  I may, after all, be fine as I get older.  Nothing is certain.

3. That dumb move is a) unlikely to have done much damage, b) not beyond the realms of possibility for me to do in future.

4. The Walk is still on.


Bad news:

1. Something's clearly gone wrong and The Dumb Move only exacerbated it.  The thing that's gone wrong is cerebro-spinal.  Hence the pins-and-needles, numb patches, and other weird symptoms that have been plaguing me with increasing intensity since December.

2. I've been doing some things wrong - who knew I should change up weights for different muscles?  Oh, you did?  Nice...  I'll ask you next time...

3. No upper-body work for, well, a while.  A really vague while but the phrases "you're not going to be pleased about this" and "longer than you'd like" have been bandied about.

So no free weights, press-ups, rowing-machine, weights machine. I didn't ask about planks.  I suspect that since the repsonse to "does it put stress on your shoulder and neck" is "yes", I've got my answer.


And we talked more about HMS and agreed that, while yes - constant pain is dispiriting and draining, and damn-near-inevitable injury in the course of working to make yourself less prone to injury is demoralising - it could be a lot worse, and - bar Dumb Moves - I'm doing pretty well.

I know people who have been made pretty much housebound by this or similar conditions.  I know people who sublux and dislocate at the drop of a hat. I've met people who're in their 20s and far more debilitated and in pain than I am on a daily basis.  I'm not sure whether that makes the pain I have to cope with any better, but it does put it in perspective.  It's worth managing it, and keeping on doing the right things, and learning from (and not punishing myself for) setbacks.

In other words: everything I said in that poem last night.  So well done me.

Monday, 17 February 2014

Bleh

Today is a Bad Joints Day.  Not only the usual suspects: Borked Shoulder, Particularly Bad Knee, Grinchy Neck Section, Dodgy Wrist, and Whingey Lower Back, but pretty much everything else as well.  The knees feel swollen, and everything is particularly clicky, achey, or twisted.

Yay.  No gym for me tonight.  This, combined with general increase in clumsiness and fine motor control near-absence today and yesterday leads me to conclude several things:

1. Sleep deprivation is a major key in pain perception/ management

Sleep has been very absent lately, especially over the last two nights.

2. I need to drink more on busy days

Like way more.

3. I have entered the "secretory" phase of my menstrual cycle

O hai progesterone, come to make a fuss, have you?

4. Standing around lots really does knacker my knees, especially when carrying heavy stuff

Seriously.

5. There may be some other factor that I'm not figuring in that is pulling everything else out of alignment

e.g. diet (sugar? acid? protein? calcium? something else?), the actual weight carried while walking/ standing, emotional stress, etc.


One of the things that worries me about, well, all of the above, is that the weekend of The Walk is a busy one, and that's got some real implications for stamina/ injury/ enjoyment on the day and recovery afterwards.

The day/ evening beforehand is a choir concert.  Judging by last time, this means: lots of standing; not much fluid intake (you don't want to rush to the loo in the middle of the gig); and a late night finish, which includes eating late.  Boo.

On the evening of the the day itself is a poetry gig that I run.  Judging by, well, every time, this means: a fair amount of standing; lots of heavy lifting (including up and down stairs); not much fluid intake (as organiser, you find yourself forgetting); and a really late night finish, which includes eating late. Double-boo.

And both will involve a fair amount of emotional stress, of different types, as well as likely to be taking place during the same less-than-ideal phase of my menstrual cycle.

Oh dear.

The Big Day is five weeks away and I have, as yet, to do any of the long walks necessary to check my ability to walk the increasingly long distances on the graph on the way up to six whole miles.  I just typed the phrase "Things keep getting in the way." and looked at it in disappointment and a measure of horror.

Oh deary me.

So the next five weeks are going to see:

1. A new sleep strategy (and set of tactics to match)

Don't ask me yet - I need to work this out.

2. A dry run of "drinking more and standing around less" for the next poetry event

Can't hurt...

3. More physio advice

She offered something I was tempted to take her up on.  Now that looks like a Very Good Idea Indeed™

4. Cracking on with the nutritionist advice

Any suggestions for good ones in Cambridge?

5. A new mattress

Mine is completely scuppered; time to spend some money.

6. Actually doing a long walk

No excuses.

7. Reading up more on hypermobility

There must be more I could be doing that I haven't thought of yet...


So watch this space, basically.

Sunday, 16 February 2014

Syncopation

I only remember when it was because my brother had been given a copy of the book of Labyrinth, and I'd been given something... forgettable, and - to my mind - infinitely inferior and unfairly girly.  I suspect it was Boxing Day.  We were bundled into the car with little explanation and yet - surprisingly - my mother was driving.  My father's tolerance for other people driving, especially a car with him in it, has never been what a body might describe as capacious.  This prompted questions that were shut down abruptly, so I sulked back into Anne of Green Gables, or Little Women, or whatever it was I'd been gifted.

I have to assume that this made it late December 1986 or 87.  I was definitely adolescent, and inclined to question my parents on pretty much everything anyway.  I don't have a clear memory of when it became apparent that we were heading to hospital; it kind of jump-cuts to my dad in the hospital bed, bare-chested, strapped to a bunch of machines that went beep.

As an aspirant doctor, I was intrigued.  As a person with an annoying book and a low boredom threshold, I was doubly so.  I appear to have refused to get worried about my dad.  I left that to afterwards.  It's been a pattern I've maintained and established for most of my life - deal with the thing in front of you, then freak out when it's safe to do so.  So I asked many questions and watched everyone's expressions, and learned about ideal electrocardiograph patterns and cardiac dysrhythmia, and how to make the best of the terrifying frustration of abruptly-drawn hospital curtains, and medical staff body language. Also that there's no way to persuade my brother out of a book he's got until he's actually read it.  I have a similar disposition, as it goes, so I can't blame him...

Happily, my father was discharged a day later (I think), and came home (where he still is) with some stern advice from fellow-doctors (I imagine that's particularly difficult to take!) about diet and exercise.

Research indicates that "Type A" personalities (competitive, time-driven, impatient, pro-active workaholics possessed of covert free-floating hostility) are more prone to cardiac incidents (I suspect that part of this is being prone to pushing through physical symptoms as signs of weakness...) than the more chilled dudes occupying the Type B category.  All of this is over-simplistic, but does appear to have a reasonable amount of basis in the results.  The key thing here, though, with regard to my unnecessary 12-hour-shift-working, impatient, explosively-tempered father is that Type A personalities are way less likely to re-infarct than their less competitive brethren. i.e. if someone sends two people home from a cardiac incident: one Type A and one Type B, with the same advice (exercise more, cut down on fatty foods, eat more oat bran (this was the 80s)), the Type B presumably says "eh, I start all that tomorrow; I'll just chill for now." The Type A, driven little bugger, is likely to go "I will be the best at not getting another heart attack!" and duly goes on to lose the weight, do the exercise, and eat oat bran like a boss.  Behold, that - oddly enough - works and Type As, surviving the first one, are less likely to die prematurely of a heart attack than Type Bs in a similar position.

Why this combined Fay Family History/ classic psychology text summary?

My dad was only a couple of years older than I am now at the time. This factoid impacts on the resolution made later in this post. We share many phenotypical expressions of our genes (more than you might imagine, at first glance) and a fair number of personality traits, including - probably most significantly - stubbornness...

None of the chronic conditions I've lived with all my life - to the best of my knowledge - are degenerative.  Manage them well and asthma, allergies, etc. will just bimble along without scaring you too much.  Oh except when they won't:

Apparently, I can only really look forward to the chronic discomfort of Hypermobility Syndrome (HMS) getting worse as I age, especially after the menopause.  This... was a bit of a shock, and made an already-annoying Thursday just that bit more fun.  And it only properly struck me some time later, so today's exercise was accompanied by a crushing sense of "what the hell is the point if it's all just going to get worse anyway?!"  Yay motivation!

But I plodded on through the physio moves (not well, but I did) and onto the mat exercises.  I carefully did the leg raises and didn't push them into Bad Pain.  I moved onto the press-ups and thought "You know what? Sod it.  I'm not that high on the HMS scale as it is and I'm going to be the best at being a muscle-bound person compensating for HMS that there is." Like many other things, being entirely pain-free and comfortable is something that will belong in memory and I will celebrate the relatively good days when they come and treat myself kindly (but not over-indulgently) on the bad days. Because a life lived in fear of pain - of anything, come to it - is pretty spectacularly rubbish(Obviously I didn't articulate this all in the middle of press-ups, but the "sod it" bit definitely came across...)

I've lived that life before, because that was the only model I was given and - you know what? - it sucked. I am occasionally extremely bitter about the waste of my life due to that inherited pigswill, but - looking back - you can see that I was always trying to break out of it (despite this, historically, leading to a good kicking by those holding the fear-reins), and to many people's eyes I'm sure that it's long looked like I did.

The post I had originally been going to write this morning about the "oh, hey, your condition will only worsen" news was far more maudlin.  Instead, I had a 4-hour "nap" (answering my body's actual need rather than "pushing through" needlessly), and then did my pre-planned exercise and ate well.  I feel ferociously better and am writing this so as to have a touchstone for that "well, if this is the best it's going to get, I'm darned well going to extend this for as long as possible" resolution.

Fit that on a motivational poster...

Monday, 27 January 2014

No Man’s Land

Some of will not want to read this. Some of you may well be relieved to see someone else saying this out loud...

Like, I suspect, a fairly large number of people out there putting together and maintaining an exercise regime, I am an adult person with an active pair of ovaries and a uterus and - along with work and other time commitments, current state of health, sleep deprivation and Stuff, I need to factor this state of affairs into my exercise planning.

For example, about a week or so before menstruating, my already floppy joints become even floppier, and more prone to damage. I need to take this into account when, e.g. doing press-ups or weights - I’m liable to injure myself. I’m also going to have to put extra effort into lifting, which may affect my perception of my strength and progress. With the mood-shifts that can come - while these can be combated by exercise, the bad ones can make actually going and doing exercise a harder ask.

I tend to change weight/ shape around this time, with water retention adding to my woes.  Which means that checking to see if I’d lost weight/ the burden of spare Fay on my belly last week was pretty much doomed!  In addition, the urge to stuff carbohydrates (especially sweet, short-chain ones) in my maw is rarely higher than at this time of my cycle. My blood pressure is often higher than normal, and migraines pounce, rounding out already foul and pathetic moods with their very own nauseating magic.

All this can pretty much be accounted for and worked around:

  • Don’t give in to your inner grump and overdo the weights.
  • Do nudge yourself firmly to a sensible timetable of exercise, no matter how much doleful poetry (seriously, it was dreadful) you compose on your phone on the way to the gym.
  • Do stop eating when you’re actually full.  Keep leaning to the high-fibre, lower-refined-sugar snacks.
  • Drink even more water.
  • Don’t berate yourself - you’re more likely to give up on yourself and sulk in front of the TV with your own personal barrel of fudge.
    Mmmh. Fudge.

I’m annoyed today, but trying to see the bright side of it.  I was due to do the Long Walk Back Home Goal today but luckily I’d already decided to do that on Saturday and do the gym tonight, as usual.

Then last night happened. Pain so intense it was like being continually punched.  It was liked being a teenager again. (Whenever I say this, it’s pretty much short for: A Bad Thing™, by the way.)  It was also, inconveniently, at 4:30am. And yes, I already had a hot water bottle. And yes, I used pretty much every pain management technique I’ve got. And yes, I got up, walked around, drank some water, tried to distract myself, then gave up and took some paracetamol. I found getting up an almighty arseache this morning, and reluctantly decided that, all things considered, I’d be doing myself more harm than good doing Proper Exercise today. Nine hours later, while sad I won’t be doing it, I haven’t changed my mind.

For those of you who may be thinking: wuss - you may well be right. And here’s a thing: I don’t care*. A massive part of this whole project is about trusting my body and the signals I receive from it, learning again how to interpret them properly.  I did quite a lot of exercise yesterday morning, having already started this new phase of the cycle, so I’m not backing away from exercise without trying it.  I’m just not going to stagger to the gym, bleeding heavily and sleep deprived. A mistake in judgement doing too little on one day of the month will do, I reckon, less damage than doing too much.

Remember: I’ve been here before, I’ve exercise-munted and crippled myself more than once.  (*I’m sufficiently self-aware to realise that this is me arguing against one of my own inner daemons; this is, after all, part of what writing this journal is for.  This one is convinced I’ll never be good enough at anything, and tells me that telling me this at every opportunity is for my own good. It’s a dick.)  I’m pretty sure I should pay attention when an organ a similar size to my heart starts shredding itself.  Back in the bad old days of the Massive Tumour™, I would move as little as humanly possible for the first three days of my menstrual cycle. Even now I’m occasionally nervous about hurting myself at such a time.

If I’m still not fit to do it tomorrow, this may become the first session I’ve cancelled since committing to the timetable.  I’m choosing to see this as a learning point rather than failure, as I’ve been at this for less than a month, and I reckon it’s going to take a few of them to establish patterns (as well as achieve some of those pesky goals!).

I am, after all, a scientist at heart as well as a poet...

Thursday, 23 January 2014

Meet my friend: Pain

Someone I know has the following advice for exercising, especially when you're getting started and don't know your limits: Stop comes before ow.

It's good advice, as it goes, but imprecise.  Ow comes at different points for different people and, in this case, "Ow" is not the beginning of pain, but a tenuously-defined point after the pain starts and before you're ripping yourself to shreds.

I have a high pain threshold, in general.  This is partly because I'm used to it as a constant (q.v. crappy joints), and partly because, when things are bad and I'm whingeing, I have some historical doozies to call back on to say: it's not as painful as [insert horrific incident], just put it away in the pain cupboard.

This management technique is good for pain when you know it'll end at some point, e.g. simple injury, recovering from surgery, headache when the source is known, migraine (although that's only minimally good when your headspace for putting pain is filled with orgulous, rolling, foggy banks of sickening pain).  However, it's a bit less useful for when the pain is scary because its source (and duration) is unknown. Then it becomes as tiring as someone constantly jumping out at random and shouting "Boo!" - you become hyper-vigilant to the point of paranoia, cringing before it even hits...

One of the things that's wrong with my poor knees is, apparently, some kind of hyperalgaesia.  Something went wrong with my ability to work out what's an ignorable amount of pain in that area and it all feels frightening and alien.  When I haven't done my exercises for a while (or eat the wrong food, or do too much standing without preparation), I go back to the place where I can't sleep for the discomfort, which sucks for two reasons, one of which being that sleep deprivation makes you more sensitive to pain.

One of the two useful things the NHS physio gave me (the other being insoles to correct pronation) was advice to touch my knees (and the areas around them) as much as possible with different kinds of pressures and textures, to basically bring up their sensation threshold.  Resting them and avoiding using them was only making them flabby and over-sensitive, basically.  Imagine that puffy rawness of paler skin out from under a plaster and breathing air for the first time in ages.  Like that.

Which brings us on to the key bit - the NHS physios told me to "do [these gentle exercises] and stop when it hurts."  The private physio told me to "do these more difficult exercises and push through the pain - your body has expectations and you need to shift them."  [This last is a contraction and paraphrase.]

Now, that's not to say that she was keen on me running around and breaking myself.  This is the woman who laughed heartily at me coming in with a busted neck, the pain of which had seemed to come on with a sneeze, but had actually been caused, she worked out, by me trying standing on my head the previous evening.  I am too heavy to stand on my head with the current parlous state of my muscles.  In this case, stop should have come way before ow.

Until very recently, I've been neglecting to stretch out properly after exercising.  I'm not entirely sure why this is.  Sometimes I'm rushing for a bus to get home, but... well... maybe I'm not taking it all seriously enough.  (Also, when the endorphins are rushing around, you think you're fine and don't need to stretch, just change, go home, and eat ALL THE PASTA.)  So I've been hurting like a bastard the following day, and that's been my measure of "congratulations: you did exercise". I used to call this "the smug fire of self-induced pain".

Yeah, not so clever.

Last night I achieved a mini-goal: front (as opposed to side-; I'm building up to that) plank held for 60 seconds.  I squeaked in victory and collapsed on the mat, all glowy.  Last night, after upping my sets to 4 instead of 3, I stretched properly, and today: yes, I feel achey, but to the degree that feels like "good workout last night" not the "holy crap, my left shoulder's so tight I've got pins and needles running down my arm" sensation I've been getting that makes me think I should see my physio.

Turns out Pain's one of those friends - you don't seek him out because he can be very draining company but, if he happens to come with the territory, you should neither avoid nor ignore him - he always speaks the truth, even though he sometimes exaggerates. Pain's part of healing, after all, and I need to break my muscles just enough to build them through healing, and pain's part of that.

Conversely, Injury's a wazzock and should be avoided if at all possible.

I guess what I'm saying is: test your limits constantly by artfully nudging beyond the ones you want to change. And have a map for what the steps are between the landmarks.  Pain is part of this - listen to him and he'll be a good friend in unfamiliar territory. And, for goodness' sake, save painkillers for emergencies!